This world is crazy. Young people shooting babies, people shooting people in hospitals, low morals, drugs, theft - and this posting will surely be out of sequence, out of whack and bounce from thought to thought. I am flighty that way and my processes reflect it. It's the best that I can do today...
I'm a worry wart. Supposing I get that straight from my grandmother, she worried and worried and worried. She made her self sick worrying. My Uncle always said, "Some people just can't handle prosperity." WOW, I'm finally getting it.
My name is Rhonda Brantley and this blog reflects daily living with an Early/Young Onset Alzheimer's Dementia patient; the good, the bad and the ugly. My husband, Billy Ray Brantley, was diagnosed in October 2007 and left us April 9, 2012. I was his primary caretaker and it was the biggest and most important job of my life. He will remain forever in our hearts.
Saturday, December 15, 2012
Sunday, December 9, 2012
Today is Sunday, the 9th of December...
This day last year would have started like this:
I would rise early, grab a cup of coffee and hit the keyboard. Typically, everyone would be home that should be home. The hustle and bustle wouldn't begin until Michelle was ready to leave for work. As always, Bill would sleep until he woke up. No cereal, oatmeal or pop-tarts for breakfast. On Sunday, I always cooked for him. He could always remember it was Sunday.
Things look different around here this year. The house is less decorated and in a much different style. Perhaps minimalist, where less is more. Keeping watch over me is a tall single cypress outside the bedroom window, lit up with the extra Christmas lights. Willie Splinter and I watch the lights dance on the wall until midnight.
A couple weeks ago and in fits and starts, I began cleaning out his closet. A nice surprise or two when going through the pockets, it is odd that I can remember nearly exactly where we were the last time he wore this or that. Separating into categories for quilts, the Abercrombie button downs here, the Hilfigers and Columbias there. I had forgotten he owned a tuxedo until I pulled it out.
By now he would be asking nearly constantly, "When are we leaving for Mikie's?"
Always anxious and excited about a road trip, I may take a different route this year.
The girls and I reminisced last night over turkey ring. I guess when the shock begins to wear off, one begins to remember better the terms of endearment, his expressions of surprise, the funny things he said, his take on the world.
Looking around, this house seems larger. Not that furnishings have been removed, but most definitely because he's not in it. Or is he? In every inch of this place, there is a memory.
Bill loved the holidays, the lights at Christmas, cooking, eating and seeing his family come together in our home. Today, I am thankful we accommodated his love of the banana pudding trifle, the chocolate covered cherries, the gathering together to make a fuss over him. He enjoyed Christmas morning as much as any child.
I wrote within weeks of his passing, "God gives us memories, that we may have roses in December."
It would have been so easy to shut down the holidays altogether this year. Even with a new twist on Christmas, we're finding it extremely difficult to come up with a new plan. Actually, the most comforting thing we've found is home.
Today marks exactly 8 months. On the 9th of April on Easter Sunday. Running my hands across his jackets brings comfort and even though I've left out a few things to wrap up in, my goal is to have most of his closet packed away by the New Year.
More aware now than ever the impressions you make and the legacy you leave, I ponder, "How will I be remembered and will there always be roses in December?"
For us, I suspect you can count on it...
My name is Rhonda Brantley and my husband, Billy Ray Brantley, suffered from Early Onset Alzheimer's Dementia. This is the best shot we have at documenting daily living.
I would rise early, grab a cup of coffee and hit the keyboard. Typically, everyone would be home that should be home. The hustle and bustle wouldn't begin until Michelle was ready to leave for work. As always, Bill would sleep until he woke up. No cereal, oatmeal or pop-tarts for breakfast. On Sunday, I always cooked for him. He could always remember it was Sunday.
Things look different around here this year. The house is less decorated and in a much different style. Perhaps minimalist, where less is more. Keeping watch over me is a tall single cypress outside the bedroom window, lit up with the extra Christmas lights. Willie Splinter and I watch the lights dance on the wall until midnight.
A couple weeks ago and in fits and starts, I began cleaning out his closet. A nice surprise or two when going through the pockets, it is odd that I can remember nearly exactly where we were the last time he wore this or that. Separating into categories for quilts, the Abercrombie button downs here, the Hilfigers and Columbias there. I had forgotten he owned a tuxedo until I pulled it out.
By now he would be asking nearly constantly, "When are we leaving for Mikie's?"
Always anxious and excited about a road trip, I may take a different route this year.
The girls and I reminisced last night over turkey ring. I guess when the shock begins to wear off, one begins to remember better the terms of endearment, his expressions of surprise, the funny things he said, his take on the world.
Looking around, this house seems larger. Not that furnishings have been removed, but most definitely because he's not in it. Or is he? In every inch of this place, there is a memory.
Bill loved the holidays, the lights at Christmas, cooking, eating and seeing his family come together in our home. Today, I am thankful we accommodated his love of the banana pudding trifle, the chocolate covered cherries, the gathering together to make a fuss over him. He enjoyed Christmas morning as much as any child.
I wrote within weeks of his passing, "God gives us memories, that we may have roses in December."
It would have been so easy to shut down the holidays altogether this year. Even with a new twist on Christmas, we're finding it extremely difficult to come up with a new plan. Actually, the most comforting thing we've found is home.
Today marks exactly 8 months. On the 9th of April on Easter Sunday. Running my hands across his jackets brings comfort and even though I've left out a few things to wrap up in, my goal is to have most of his closet packed away by the New Year.
More aware now than ever the impressions you make and the legacy you leave, I ponder, "How will I be remembered and will there always be roses in December?"
For us, I suspect you can count on it...
My name is Rhonda Brantley and my husband, Billy Ray Brantley, suffered from Early Onset Alzheimer's Dementia. This is the best shot we have at documenting daily living.
Wednesday, November 14, 2012
The Holidays and Italian Thanksgiving
Because of our family dynamic, having Christmas or Thanksgiving at our home on the actual day never rendered the entire bunch together. Kids visiting their mothers and fathers (natural) which finally left us the choice of celebrating early. So, Thanksgiving dinner with our bunch was generally the week before and nobody really wanted the traditional Thanksgiving fare. That is when Italian Thanksgiving began.
This year, the girls (Kate and Michelle) are absolutely against anything to eat that even resembles Thanksgiving fare. Only substituting a ham for a turkey on Easter, the meals are typically identical. (Remember, Bill passed not too long after our Easter meal April 9th)
His passing also represents new traditions. I am not cancelling our old ones, but this year feel that it is important for us to try and move forward. Still raw and fresh in our hearts is the emptiness of his absence, therefore I am confident that insisting upon keeping the status quo is a not so compassionate way to approach this. Hard enough will be navigating the memories without him, even harder will be trying to recreate something that will never be. It was because of him that those traditions began. It was he who enjoyed them so. He is gone. That tradition is gone.
So empty the chair he occupied, the space he commanded, the noise he created -
We have voted and agreed that the girls and I will be having Italian Thanksgiving on Thanksgiving Day. And, because I will not be cooking, we will revert back to a pre-Bill tradition and decorate the tree and house for Christmas - all weekend long!
The beautiful and thoughtfully collected glass ornaments we have amassed and used over the years will remain in their storage bins, safely marking time for another Christmas down the road. I'm even trading in the old candles for a new scent. The new natural burlap ribbon has been ordered and Tracey Cole and I will be applying the mercury glass look to any and everything we can find.
I cannot thank those enough for the invitations to spend Thanksgiving away from home. From South Carolina to Texas and many friends locally, the girls have said no thank-you to Thanksgiving fixins'. Nor do they want to spend Thanksgiving with another family. Hopeful that this will improve, I gratefully acquiesce.
My good friend Sonia Bertolone de Carillo has a locally famous restaurant named after it's founder (her father). Joe's Italian will be taking orders early for next week and I intend to get ours in today. The thought of Mamma's salad, lasagna, ravioli rose, cannoli, bread and dipping sauce, even a little tiramisu makes me smile.
After recently spending time with Giuseppe (Joe) Bertolone, I came away with a new respect for the guys who built and carried on their businesses, teaching and employing their children, building community with pride and quality. Joe educated me on his home place in Italy with great passion and I was able to assist him with navigating his facebook page. Overall, it was splendid. So perhaps it is not just about having Italian food for dinner, moreover, a tribute of sorts to Joe - the kind of man who goes to work every day, the man who takes care of his family. In sickness or in health because that is just what you do.
And then, perhaps I will throw in a purchased smoked Turkey for sandwiches and a Costco pecan pie. Perhaps.
As for Christmas, we have always traveled. Either by boat, plane, train or Suburban. Long trips, short trips, out of the country trips. Beach, Las Vegas, Texas, Utah, Colorado, Bahamas...
However this year, we are staying at home. And it will probably include the remainder of Joe's Italian menu items we did not get to sample on round one.
My name is Rhonda Brantley and my husband, Billy Ray Brantley suffers from Early Onset Alzheimer's Dementia. This is the best shot we have at documenting daily living.
Labels:
Christmas,
Holidays,
Joe's Italian Alabaster,
Thanksgiving
Monday, November 5, 2012
Hi Rhonda,
Healthline recently finished putting together a collection of the best online Alzheimer's videos. You can find it at: http://healthline.com/health-slideshow/best-videos-alzheimers
We encourage you to share the list with friends, followers, and subscribers.
Thank you in advance for your consideration.
Warm Regards,
Tracy
Saturday, October 27, 2012
Nursing Assistant Guide
Hello Rhonda,
I'm following up with you about the list NursingAssistantGuides.com published today of the Top 100
Senior Living Sites for Nurses.
I emailed you last week to tell you you had been nominated for inclusion, and I'm happy to report that our site has been featured on the final list! You can view the whole thing here:
http://nursingassistantguides.com/senior-living/
We made this list so that our readers, prospective nursing assistant students and current professionals, could learn more about the growing field of elder care and senior living. As the baby boomer generation ages into retirement, there will be a growing need for nurses and nursing assistants who are passionate about offering lifestyle improving care to elderly patients. Thank you for maintaining such a useful site, and congratulations!
If you need assistance posting the badge, or have any questions or feedback, you can always email me.
Best,
Lauren
Tuesday, October 23, 2012
What does six months look like?
Many have asked me to write. The crux is, I have nothing to say. Yet.
Crazy thing is, we're getting picked up by all kinds of medical blogs and that didn't happen until he was gone. Bill was just the kind of man who would have appreciated that what he was going through - what we were going through - could somehow help someone else.
His clothes still hang in the closet, his fishing tackle still sits in the garage, his flashlights are still in the bedside table. Sundays are still a killer. Sundays were our special days. Bill left us on Easter Sunday.
So many things he would have enjoyed this week. Little Miss landed a great job and is close to landing a great internship. She's only 28 credit hours from graduating, but she has the resources to continue on - so that's the plan. All the grandies are growing and doing their thing. I finally painted some walls in the house and I'm sleeping in the bed.
Then, there are some things he would have worried over. Business issues still haunting us. His mother's affairs still aren't in order. A few of the kids are suffering. Willy Splinter is sleeping in the bed with me.
Finally pulled myself together enough to order a grave marker when we came upon the 6-month mark. It's curious now how time flies. It was Spring. Now it is Fall.
I asked my Tracey to accompany me to the cemetery on Sunday to plant the Cottonwood Tree and put out the Deer Dope. She videotaped the event with my iPhone and before it was over we were both sobbing. If I lay it out without editing it, we may all get to sobbing.
My name is Rhonda Brantley and my husband, Billy Ray Brantley suffered from Early Onset Alzheimer's Dementia. This is the best shot we have at documenting daily living.
Monday, August 6, 2012
Our diatribe made the Healthline Top 25...
Hi Rhonda,
Healthline editors recently published the final list of their favorite Alzheimers Dementia blogs and your blog made the list. You can find the complete list at: http://www.healthline.com/health-slideshow/best-alzheimers-dementia-blogs (in no particular order). We encourage you to share your status as one of the best blogs on the web with your friends, family, & followers.
Congrats & continue the great work!
Warm Regards,
Tracy
Healthline editors recently published the final list of their favorite Alzheimers Dementia blogs and your blog made the list. You can find the complete list at: http://www.healthline.com/health-slideshow/best-alzheimers-dementia-blogs (in no particular order). We encourage you to share your status as one of the best blogs on the web with your friends, family, & followers.
Congrats & continue the great work!
Warm Regards,
Tracy
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